Cholestatic Liver Diseases: New Treatments, Tools, and Symptom Management 

Description

Developed by the Patient Advisory Group, specialists in the cholestatic liver diseases primary biliary cholangitis (PBC) and primary sclerosing cholangitis (PSC) collaborate with patient advocates to shine a light on: (1) newly available treatments for PBC; (2) a new tool for patients to use during their first visit with their hepatologist; (3) an exciting registry for patients with PSC; and (4) what patients need to know about symptom management. 

Journey Maps

Presentations

2:00 PM - 2:15 PM
Nov 09 2025
Washington, D.C.

New Treatments for Primary Biliary Cholangitis

Christopher L Bowlus, MD, FAASLD, Presenter
Patient Program
2:15 PM - 2:25 PM
Nov 09 2025
Washington, D.C.

What Do I Need to Know at My First Visit: Project 90:90

Alan Bonder, Presenter
Patient Program
2:25 PM - 2:35 PM
Nov 09 2025
Washington, D.C.

What Do I Need to Know at My First Visit: Project 90:90, Patient Perspective

L. Marie Asad, Presenter
Patient Program
2:35 PM - 2:50 PM
Nov 09 2025
Washington, D.C.

Patient-Led Innovation: PSC Partners Seeking a Cure Registry

Rachel Gomel, M.A., Presenter
Patient Program
2:50 PM - 3:05 PM
Nov 09 2025
Washington, D.C.

Symptom Management: What Patients Need to Know

Meagan Alvarado, MD, Presenter
Patient Program
3:05 PM - 3:30 PM
Nov 09 2025
Washington, D.C.

Panel Discussion

Robert Mitchell-Thain, Panelist
Patient Program

Objectives

  • Describe the use of established and newer medications to treat primary biliary cholangitis (PBC) and its symptoms.
  • Discuss the use of a new patient registry for patients with cholestatic liver diseases.
  • Identify a practical list of questions and issues that patients with PBC may use for their initial visit with a health care provider.