Lessons Learned From Large International Registries of Pediatric Liver Diseases

Description

Speakers present diverse registry-based studies in liver disease with the objectives to dissiminate evidence-based practice knowledge and enhance collaboration. Study data from the Global Alagille Alliance (GALA) study, the International Registry of Congenital Porto-Systemic Shunts (IRCPSS), and the International Multicenter Pediatric Portal Hypertension Registry (IMPPHR) are reviewed.

 

Journey Maps

Presentations

2:00 PM - 2:20 PM
Nov 10 2025
San Diego, CA

The Global Alagille Alliance Study

Binita Kamath, MBBChir, FAASLD, Presenter
Pediatrics
2:20 PM - 2:40 PM
Nov 10 2025
San Diego, CA

The International Registry of Congenital Porto-Systemic Shunts

Valérie A McLin, MD, Presenter
Pediatrics
2:40 PM - 3:00 PM
Nov 10 2025
San Diego, CA

The International Multicenter Pediatric Portal Hypertension Registry

Benjamin L. Shneider, MD, FAASLD, Presenter
Pediatrics

Objectives

  • Analyze the contributions of international registries to understanding the epidemiology, clinical course, and outcomes of pediatric liver diseases.
  • Discuss how data from these registries informs evidence-based practices and improves clinical decision-making in pediatric hepatology.
  • Explore collaborative opportunities for advancing research and care through multi-institutional and multinational data sharing.
Chair

James E Squires, MD, MS

Children's Hospital of Pittsburgh
Chair

Samar H Ibrahim, MBCHB, FAASLD

Mayo Clinic Rochester