Lessons Learned From Large International Registries of Pediatric Liver Diseases
Nov
10
2025
Convention Center: Room 146C, Level 1
2:00 PM - 3:30 PM
World Class Speakers
Description
Speakers present diverse registry-based studies in liver disease with the objectives to dissiminate evidence-based practice knowledge and enhance collaboration. Study data from the Global Alagille Alliance (GALA) study, the International Registry of Congenital Porto-Systemic Shunts (IRCPSS), and the International Multicenter Pediatric Portal Hypertension Registry (IMPPHR) are reviewed.Journey Maps
Presentations
2:00 PM - 2:20 PM
Nov
10
2025
Washington, D.C.
The Global Alagille Alliance Study
Binita Kamath, MBBChir, FAASLD, Presenter
Pediatrics
2:20 PM - 2:40 PM
Nov
10
2025
Washington, D.C.
The International Registry of Congenital Porto-Systemic Shunts
Valérie A McLin, MD, Presenter
Pediatrics
2:40 PM - 3:00 PM
Nov
10
2025
Washington, D.C.
The International Multicenter Pediatric Portal Hypertension Registry
Benjamin L. Shneider, MD, FAASLD, Presenter
Pediatrics
Objectives
- Analyze the contributions of international registries to understanding the epidemiology, clinical course, and outcomes of pediatric liver diseases.
- Discuss how data from these registries informs evidence-based practices and improves clinical decision-making in pediatric hepatology.
- Explore collaborative opportunities for advancing research and care through multi-institutional and multinational data sharing.
Chair
James E Squires, MD, MS
Children's Hospital of Pittsburgh
Chair
Samar H Ibrahim, MBCHB, FAASLD
Mayo Clinic Rochester