Speaker
Emily Ventura, BSN, RN
PFIC Network, Inc.
Biography
Emily Ventura, BSN, is the Co-founder and Executive Director of Progressive Familial Intrahepatic Cholestasis Advocacy and Resource Network. Established in 2018, PFIC Network's mission is to improve the lives of patients and families worldwide affected by PFIC. As the mother of a PFIC patient, she is deeply connected to this work. Prior to founding PFIC Network, Emily had a long career as an ICU nurse, which gives her unique insight into both the clinical and personal sides of the rare patient experience.