Melissa Kochanowsky is the Associate Program Director at PFIC Network, a nonprofit supporting patients and families worldwide affected by progressive familial intrahepatic cholestasis (PFIC). She helps lead global PFIC-focused initiatives in education, support, and research, and serves as Principal Investigator for the PFIC Network Patient Registry. She also co-led Project IMPACT (Identifying research targets by Merging Patient And Clinician Treatment information), a PCORI-funded initiative to build capacity for patient-centered comparative clinical effectiveness research in PFIC.