Pediatric and Rare Liver Diseases: Challenges and Opportunities

Description

Pediatric and rare liver diseases present unique diagnostic, therapeutic, and psychosocial challenges for children and their families. Delayed diagnosis, limited treatment options, fragmented care, and inequitable access to specialty services continue to impact outcomes across the lifespan. Program presenters provide an overview of challenges and solutions, and share a view of what may be in store in the future.

Presentations

8:00 AM - 8:15 AM
Convention Center - Mile High Ballroom 4DEF

Pediatric and Rare Liver Disease Through a Family-Centered/Patient Experience Lens

Gina Bartes, MSc, PhD | Presenter
8:15 AM - 8:30 AM
Convention Center - Mile High Ballroom 4DEF

Patient Perspective: Family Life—Specialty Care, Education, and Psychosocial Stressors

Laura Bonebrake, MD | Presenter
8:30 AM - 8:45 AM
Convention Center - Mile High Ballroom 4DEF

Diagnostic Challenges and Evolving Standards of Care

Sanjiv Harpavat, MD, PhD | Presenter
8:45 AM - 9:00 AM
Convention Center - Mile High Ballroom 4DEF

Preparing Adolescents and Families for Adult Hepatology Care

Kristin Hatcher | Presenter
9:00 AM - 9:30 AM
Convention Center - Mile High Ballroom 4DEF

Panel Discussion

Shreena Patel, MD | Moderator

Objectives

  • Describe key clinical, developmental, and psychosocial challenges associated with pediatric and rare liver diseases.
  • Apply family-centered and patient-informed approaches to improve diagnosis, care coordination, and transition planning.
  • Identify opportunities to integrate patient and caregiver perspectives into pediatric liver research, clinical trials, and policy development.