Cholestatic Liver Disease: Lived Experience Influencing Care Pathways
Nov
2026
Description
Developed by Patient Advisory Group, this session examines the importance of the patient experience within research and clinical care with a focus on cholestatic liver disease—especially primary sclerosing cholangitis (PSC). Session themes include issues of delayed diagnosis, fragmented care, unmet symptom burdens, and ways to improve the patient experience through better care coordination.
Presentations
11:05 AM
- 11:15 AM
Convention Center - Mile High Ballroom 4DEF
Overview of Unmet Needs in Cholestatic Liver Disease: Patient Pathways/The Journey From Diagnosis to Treatment
Gina Bartes, MSc, PhD | Presenter
11:15 AM
- 11:30 AM
Convention Center - Mile High Ballroom 4DEF
Patient Perspective: Diagnostic Journey and Disease Impact on Daily Life
Sophie Hansen, BS | Presenter
11:30 AM
- 11:45 AM
Convention Center - Mile High Ballroom 4DEF
Patient Perspective: Psychological Aspects of Early Intervention and My Patient Journey
Catarra Simmons | Presenter
11:45 AM
- 11:55 AM
Convention Center - Mile High Ballroom 4DEF
Care Coordination, Symptom Management, and Patient Education
Ann Moore, FNP-C | Presenter
11:00 AM
- 11:05 AM
Convention Center - Mile High Ballroom 4DEF
Setting the Stage: Introduction and Welcome to Overview of the Unmet Needs in Cholestatic Liver Disease
Bruce Luxon, MD, PhD, FAASLD | Presenter
11:55 AM
- 12:25 PM
Convention Center - Mile High Ballroom 4DEF
Panel Discussion
Gina Bartes, MSc, PhD | Moderator
