Caregiver perspectives on the everyday medical and social needs of long‐term pediatric liver transplant patients
Sharad I. Wadhwani, Ana‐Gabriela Barrera, Holly P. Shifman, Ethel Baker, John Bucuvalas, Lara M. Gottlieb, Uma Kotagal, Sue J. Rhee, Jennifer C. Lai, Courtney R. Lyles – 6 May 2022 – Using in‐depth interviews, we sought to characterize the everyday medical and social needs of pediatric liver transplant caregivers to inform the future design of solutions to improve care processes. Participants (parents/caregivers of pediatric liver transplant recipients) completed a survey (assessing socioeconomic status, economic hardship, health literacy, and social isolation).